May 5th, 2015
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Nurses For Angels Charity Night »
Nurses for Angels are a group of Nurses who work in and around Chester. We are organising a fundraiser event at Telford’s Warehouse in Chester on 5th May 2015 at 1900. We are having a raffle/auction and have live music from Liverpool based band Tiro Lark. Tickets £5 each.
Our main wish is to highlight the little-known-about genetic disorder Angelman Syndrome. Our colleagues three year old son Jack, from Buckley, Flintshire was diagnosed with this twelve months ago and we feel it is important to raise awareness and we are trying to raise funds for Jack and his school, Ysgol Pen Coch in Flint.
Angelman Syndrome is rare with less than 1000 cases in the UK. It is a genetic disorder affecting chromosome 15. Jack has the most severe form as he is classed as ‘deletion’ rather than ‘mutation’ (part of the chromosome is missing, rather than abnormal). This tiny thing causes severe learning difficulties, epilepsy, poor balance, many never talk or speak just a few words and many never walk. 85% of sufferers also start with Epilepsy, which Jack has recently been diagnosed with. With all of this his mum Cheryl states “I am hopeful for Jack and will always stay positive for him and on the plus side, Jack is very happy, smiles all the time and laughs at the slightest stimulation”.
As Nurses we work every day helping members of the general public and it feels completely natural to us to use our spare time to help a colleague and a wonderful little boy.
Tickets can be bought from the venue or any of us involved and all of our details are on our Facebook page ‘Nurses for Angels’ or on Twitter @Nursesfor.